Program Evaluation and Monitoring System - CDC | Community HIV/AIDS Mobilization Project

Don’t Let PEMS Paralyze HIV Prevention Programs

June 2006 UPDATE

On May 31st, CDC released a Dear Colleague letter announcing that PEMS data collect requirements for counseling and testing will be postponed "until a later date," and that work groups are being formed to review variables requirements and system usability. The letter also includes CDC's summary of the "PEMS Stakeholders Meeting" on April 25-26.

During this time, programs can continue to collect programmatic data utilizing whatever systems are currently in effect at the local level. If you are told differently by any federal, state or local official, please contact us immediately by emailing sean@champnetwork.org.

Are you or your colleagues attending the HIV Prevention Leadership Summit (HPLS)? Please join us for a CHAMP-convened roundtable titled “Community-Driven Monitoring and Evaluation of Prevention Programs" on Tuesday (June 6) from 8:30-10:30am. CDC will also be hosting an institute titled "PEMS Program Review, New Directions Based on Grantee Feedback" on Monday (June 5th) from 2-5pm.

PEMS Stakeholders Meeting Update

Check out CHAMP's two-page meeting summary, CDC's Day 1 and Day 2 presentations, and Stakeholder recommendations (Part 1) and (Part 2) for CDC. Each meeting participant also recieved a copy of the community sign-on letter to CDC proposing four core recommendations for improving PEMS.

You can share concerns or comments about PEMS by sending an email to sean@champnetwork.org. Your feedback is essential in shaping our advocacy and we will keep all emails confidential.

CHAMP and Community Documents CHAMP's recommendations for CDC data collection systems for HIV prevention programs April Community Sign-on Letter The Case Against CDC'S Program Evaluation and Monitoring System Paul Feldman, Health Privacy Project Lambda Legal and ACLU Letter to CDC Health Privacy Project Letter to CDC Informal cost analysis of the impact of PEMS on community-based organizations Sign-on Letter to CDC Jan 06 One-page backgrounder Background for Providers Dec 05 “HHSWatch” on PEMS CHAMP Press Release Dec 19 Nov 05 PEMS Watch Flyer	CDC Documents PEMS Reporting Requirements PEMS Variables V 2.0 Prevention Case Management form CTR Manual Jan 06 Rules of Behavior for PEMS Agency Users Rules of Behavior for PEMS Agency System Administrators Rob Janssen's letter re: PEMS and IRB Rob Janssen's letter re: PEMS MOU PEMS Security Summary CPEMS MOU Training documents Data Collection Training – plenary presentation PEMS Deployment Planning Workshop Communication to Grantees Letter about Jan deadlines Miscellaneous “Responding to Resistance” (handout from a training)	Media Coverage January 19, 2006 Gay City News: Fed HIV Privacy Concerns, AIDS groups charge intensive report effort could compromise confidentiality January 6, 2006 Gay People’s Chronicle: Feds Force HIV Groups to Ask Prying Questions January 6, 2006 gay.com: Big Brother Hits AIDS Programs December 28, 2006 Poz: Feds Ask Questions, HIV Preventionistas Squirm December 21, 2005 365gay.com: New HIV Reporting Guidelines Could Endanger Privacy AIDS Group Warns
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